Heart Child

A Prayer for the Heart (4)

Life is like a tango: two steps forward, and one step back. Overall it’s good to know you’re moving forward, but sometimes you’ll just have those day in between when everything goes backwards. This has been one of those days.

Well… frankly, it’s not entirely true that it’s been full throttle backwards today; Johannes has actually continued to steadily improve physically. But it’s been a very sad day for him mentally, and his mood has fallen way past his bottom level. I don’t think I have ever seen him so depressed. The doctors reassure us that most children his age react this way a few days after surgery. That may be, but natural or not, I still very sorry for him. Beside the great physical discomforts, that he now takes greater notice of, as the drugs slowly leave his system, he has started to vomit quite a bit also.

But the saddest part for him was the bad news we received this morning from our cardiologist after an ultra sound examination of Johannes’ “new” implantation, a contegra. This is like his former homograft but coming from a bull’s neck vein instead of from a human aorta. It turns out that right at the joint of the contegra and the lung artery, where the stitches are, the blood pressure is too high for some reason. And the ultra sound can’t tell us clearly why. One possible cause is that the contegra is to tight in that end. But the only way to know for sure is to perform a heart catheterisation, where a catheter is inserted through a major vein in the groin, leading up to the heart. There they can monitor exactly.

Of course, this is s a good thing to do if you want real answers. The only problem is that they want to do this tomorrow, Thursday afternoon. This means putting Johannes back to sleep again. And he really, really, really does not want to do that. We just need to find a way to help him get through it again. But… it might not stop there. In an open conversation today I told my son that he might have to undergo yet another major operation, should this small surgery tomorrow show a negative result. Upon hearing that, his spirits didn’t exactly cheer up. But I felt I had to tell him, just to prepare him.

Having said all this, however, Angelica and I both feel that things will soon be okay, somehow. A lot of that confidence comes from our faith, but also from the many thoughts and prayers sent our way from our family, and from many of you. We thank you from the bottom of our hearts.

And while you’re at it, please say an extra prayer tomorrow afternoon.

Warmest regards, Louis

9 replies »

  1. Thank God for giving us doctors who with their expertice and their knowlegde today can discover this problem! If this was some 100 years ago, it would not be possible to discover a problem like this.

    I am sure that The Lord will protect and help you all through this hard time. I pray for you all!
    I pray for the doctors hands in helping Johannes,that it will be a succes. Heartsurgery is done every day all over the world.

    Love Jeannette Larsen
    Copenhagen, Denmark

  2. I pray that all Angels and higher power will be with you today and for the upcoming time to heal the hard time you´re going thrue. Bless You!

    Lots of Light & Love

  3. Louis og Angelica,jeg sender jer mange varme tanker og håber på det bedste.Det er sandt,at hver gang,man tager et skridt frem,går man to tilbage,men Johannes er en stærk dreng.Her i Danmark i dag skinner solen så dejligt,jeg tror det bliver en god dag,jeg skal nok tænke på jer.
    Kærligst Jeannette.

  4. I can´t tell you how sorry I am for you – that you have to go through this. Both Johannes himself, but also for you – his parents! Still I pray and believe that God will hold you all in His hand through the storm, and that all will turn out well in the end.

  5. I´m sure the angels will be all around him strengthening him in these difficult hours.
    These words just came across my mind…
    D&C 121:7 “My son, peace be unto thy soul; thine adversity and thine afflictions shall be but a small moment” and 136:29 “If thou art sorrowful, call on the Lord thy God with supplication, that your souls may be joyful”
    I often find great comfort in these words… I hope you will too, especially Johannes !

    Hold on – we can be strong together

  6. The backwards days are so hard to make it through, our whole family is praying for all of you that the best will happen and he will have to go through as little as possible.

    God be with you,

  7. Tråkigt att höra att det behövs göras mer ingrepp.
    Ska man se nått positivt i det hela får man vara glad att man lever i den tid man gör och att man inte levde för 100 år sen, med tanke på hur tekniken går framåt och att läkarna idag i princip gör hjärtkirurgi som ren rutin.
    Jag håller tummarna!

  8. Louis and Angelica

    Brave, beautiful Johannes. What he has to go through.
    You just hang in there, focus on the day when he will be running around, joyfully playing. Although we fall into the category “strangers” we sincerely hope and wish for the best for your amazing son. We will continue praying for him throughout the day.


  9. My eyes are in tears, can’t find words!

    Louis and Angelica, I will pray for Johannes, I wish him ALL the best.

    Kind Regards
    Jeanette, Arlöv

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